Guide to the Southeast Asian Genetics Program Records MS.SEA.017

Processed by Anna Liza Posas, 2003.
Special Collections and Archives, University of California, Irvine Libraries
(cc) 2003
The UCI Libraries
P.O. Box 19557
University of California, Irvine
Irvine 92623-9557
spcoll@uci.edu


Contributing Institution: Special Collections and Archives, University of California, Irvine Libraries
Title: Southeast Asian Genetics Program records
Creator: California College of Medicine
Identifier/Call Number: MS.SEA.017
Physical Description: 2.6 Linear Feet (3 boxes) and 1 digitized image
Date (inclusive): 1984-1991
Physical Location: University of California, Irvine. Library. Special Collections and Archives. Irvine, California 92623-9557.
Abstract: This collection comprises records produced by the Southeast Asian Genetics Program (SEAGEP), including correspondence and manuscripts, grant applications, research data regarding birth defects and genetic blood disorders, literature on Southeast Asian and Cham communities, SEAGEP publications, and video productions by SEAGEP and other health organizations. SEAGEP publications and video productions include multilingual versions. Literature concerning the Cham (a Muslim ethnic group from Vietnam and Cambodia) relates to an article published by Dr. Kenneth Dumars and Chantan S. Chea, "The Cham: A Population Isolate."
Language of Material: English .

Access

Collection open for research.

Publication Rights

Property rights reside with the University of California. Literary rights are retained by the creators of the records and their heirs. For permissions to reproduce or to publish, please contact the Southeast Asian Archive Librarian.

Preferred Citation

Southeast Asian Genetics Program records. MS-SEA017. Southeast Asian Archive, The UC Irvine Libraries, Irvine, California. Date accessed.
For the benefit of current and future researchers, please cite any additional information about sources consulted in this collection, including permanent URLs, item or folder descriptions, and box/folder locations.

Acquisition Information

Gift of Dr. Kenneth W. Dumars, director of the SEAGEP, 1998.

Processing Information

Processed by Anna Liza Posas in 2002. Processing was supported by a Library Services and Technology Act (LSTA) grant from the California State Library.

Organizational History

In 1984 the Southeast Asian Genetics Program (SEAGEP) was established to identify services for Southeast Asian communities concerning birth defects and developmental disabilities, and conduct community and cross-cultural education. It was a four-year program funded by the Federal Bureau of Maternal and Child Health (MCH), a division of the Department of Health and Human Services. SEAGEP existed longer than its original grant cycle due to the continued support of MCH and other organizations. SEAGEP was directed by Kenneth W. Dumars and coordinated and administered by faculty and staff from the Division of Development Disabilities and Clinical Genetics, a University Affiliated Program at University of California, Irvine.
At the time of SEAGEP's establishment, the growing Southeast Asian communities consisted predominately of refugees from Vietnam, Cambodia, Laos, and members of the Cham ethnic group. Many of these groups resettled in Orange and south Los Angeles counties.
A persistent language and cultural barrier between Western-educated medical practitioners and their Southeast Asian patients became apparent. Western practitioners also had little information regarding the cultures and medical histories of Southeast Asian populations. Therefore, SEAGEP worked with Southeast Asian communities as well as the practitioners who would be serving these communities through seminars, bilingual literature, cooperative efforts with other public health organizations, and the production of a video, Southeast Asia: The Land, The People, and The Culture. SEAGEP also collected much-needed data and conducted intensive research regarding thalassemia, a genetic blood disorder common to the Mediterranean and Asian regions, and other prevalent genetic blood disorders.
As reflected in a pamphlet printed in 1987, SEAGEP more specifically sought to achieve the following goals:
  • Identify specific needs and concerns of members of the SEA communities regarding birth defects, development disabilities, and inherited disorders.
  • Increase education and awareness in the SEA communities regarding the availability and appropriate use of medical services.
  • Investigate the incidence and prevalence of specific inherited disorders within SEA communities.
  • Provide SEA medical services to SEA families affected with a congenital or inherited condition.
  • Increase the use of available community resources by SEA families.
  • Educate those who provide medical and counseling services to SEA cultures.
By 1991, SEAGEP had dissolved due to lack of grant funding.

Scope and Content of Collection

This collection comprises records produced by the Southeast Asian Genetics Program (SEAGEP), including correspondence and manuscripts, grant applications, research data regarding birth defects and genetic blood disorders, literature on Southeast Asian and Cham communities, SEAGEP publications, and video productions by SEAGEP and other health organizations. SEAGEP publications and video productions include multilingual versions. Literature concerning the Cham (a Muslim ethnic group from Vietnam and Cambodia) relates to an article published by Dr. Kenneth Dumars and Chantan S. Chea, "The Cham: A Population Isolate."

Arrangement

The collection materials are aranged alphabetically by document type, then filed topically. Except as noted, contents of folders are arranged chronologically. Audiovisual materials are arranged by format (VHS and U-matic) ,and then alphabetically by title.

Related Material

This collection is supplemented by materials in the SEA Archive's newspaper clippings vertical file.

Subjects and Indexing Terms

Refugees -- Vietnam -- Archives
Refugees -- California -- Orange County -- Archives.
Vietnamese Americans -- California -- Archives
Traditional medicine -- History -- Sources
Abnormalities, Human.
Cham (Southeast Asian people) -- Archives.
Asia, Southeastern -- Emigration and immigration.
California, Southern -- Emigration and immigration
Refugees -- California -- Los Angeles -- Archives
Refugees -- Cambodia -- Archives
Thalassemia -- Sources
Medical research personnel.
Health care personnel.
Refugee camps -- Southeast Asia -- History -- Sources
Video recordings -- 20th century.
University of California, Irvine. Southeast Asian Genetics Program -- Archives

 

Correspondence, manuscripts, and notes

box 1, folder 1

Notes on Thalassemia and Council of Regional Networks for Genetic Service (CORN) 1994-1995.

Scope and Contents note

Also includes 1990 Thalassemia conference proceedings manuscript and materials; original order of contents left intact.
box 1, folder 2

Proceedings from the 1990 Thalassemia in Asian Americans : working together conference 1990-1992

Scope and Contents note

Materials include 1990 report on refugee demographics in California.
box 1, folder 3

Submission to Journal of the American Medical Association and the Western Journal of Medicine by SEAGEP 1991

box 1, folder 4

Thalassemia video production materials 1987-1990

 

Data, research notes, and surveys

box 1, folder 5

"Barts hemoglobin" newborn study test data 1986-1987

box 1, folder 6-7

Birth defects data gathered by Dr. Le Dao, M.D 1980-1988

Physical Description: 2 folders.
box 1, folder 8

California immigration and birth data 1982-1990

box 1, folder 9

Survey and pathology reports from Thalassemia community 1986-1987

box 1, folder 10

Survey results from UCI Medical Center's Southeast Asian patients 1986-1987.

Scope and Contents note

Includes speech written for the Southeast Asian medical symposium.
box 1, folder 11

Thalassemia and hydrops fatalis research, Orange County and Long Beach areas 1990

 

Grant applications

box 1, folder 12

March of Dimes and supporting material 1987

box 1, folder 13-17

Maternal and Child Health (MCH) and supporting material 1984-1989.

Physical Description: 5 folders.
General Physical Description note: no content
 

Literature, including clippings and other publications

box 1, folder 18

Cham people and culture 1967-1989 predominant 1982-1989

Scope and Contents note

Includes undated publications.
box 2, folder 1

SEAGEP abstracts, publications, and supporting materials 1985-1987

box 2, folder 2-3

Southeast Asian community 1971-1996 predominant 1981-1996.

Physical Description: 2 folders.

Scope and Contents note

Includes undated publications.
 

Videocassettes, U-matic

box 3, item MS-SEA018-V07

House of the spirit: perspectives on Cambodian health care, produced by American Friends Service Committee (AFSC) 1985

box 3, item MS-SEA017-V08

Peace has not been made: a Hmong family's encounter with a U.S. hospital , produced by John Finck & Doua Yang, Rhode Island Office of Refugee Resettlement, approximately

box 3, item MS-SEA017-V09

Second lives: the shaping of a multi-ethnic community produced by Videovision Corp., Orange County, CA

box 3, item MS-SEA017-V10 / V13

Thalassemia, produced by SEAGEP 1987.

Physical Description: 4 videocassettes.

Scope and Contents note

Cambodian, Hmong, Laos, and Vietnamese versions.
 

Videocassettes, VHS

box AV-005, item MS-SEA017-V01

Hepatitis B- the invisible threat, produced by Cityscope 21, Long Beach, California circa 1984-circa1991

box AV-005, item MS-SEA017-V02

The people of the shining path circa 1984-circa1991

box AV-007, item MS-SEA017-V03

Southeast Asia: the land, the people, and the cultures, produced by SEAGEP 1987

box AV-007, item MS-SEA017-V03U

Researcher use copy circa 1987

box AV-007, item MS-SEA017-V04 / V06

Thalassemia.

Physical Description: 3 videocassettes.
General Physical Description note: no content

Scope and Contents note

Includes 2 early versions and edited master of the final version dated 1998.