Guide to the Southeast Asian Genetics Program Records

Processed by Anna Liza Posas
Special Collections and Archives
The UCI Libraries
P.O. Box 19557
University of California
Irvine, California 92623-9557
Phone: (949) 824-3947
Fax: (949) 824-2472
Email: spcoll@uci.edu
URL: http://special.lib.uci.edu
© 2003
The Regents of the University of California. All rights reserved.

Guide to the Southeast Asian Genetics Program Records

Collection number: MS-SEA017

Special Collections and Archives

The UCI Libraries

University of California

Irvine, California

Contact Information

  • Special Collections and Archives
  • The UCI Libraries
  • P.O. Box 19557
  • University of California
  • Irvine, California 92623-9557
  • Phone: (949) 824-3947
  • Fax: (949) 824-2472
  • Email: spcoll@uci.edu
  • URL: http://special.lib.uci.edu
Processed by:
Anna Liza Posas
Date Completed:
2002
Encoded by:
Andre Ambrus
© 2003 The Regents of the University of California. All rights reserved.

Descriptive Summary

Title: Southeast Asian Genetics Program records,
Date (inclusive): 1984-1991
Collection number: MS-SEA017
Creator: California College of Medicine.
Extent: 2.6 linear feet 3 boxes 1 digitized image
Repository: University of California, Irvine. Library.Special Collections and Archives.
Irvine, California 92623-9557
Abstract: This collection comprises records produced by the Southeast Asian Genetics Program (SEAGEP), including correspondence and manuscripts, grant applications, research data regarding birth defects and genetic blood disorders, literature on Southeast Asian and Cham communities, SEAGEP publications, and video productions by SEAGEP and other health organizations. SEAGEP publications and video productions include multilingual versions. Literature concerning the Cham (a Muslim ethnic group from Vietnam and Cambodia) relates to an article published by Dr. Kenneth Dumars and Chantan S. Chea, "The Cham: A Population Isolate."
Physical location: University of California, Irvine. Library. Special Collections and Archives. Irvine, California 92623-9557.
Language: English.
Selected digitized images from this collection.

Administrative Information

Access

Collection open for research.

Publication Rights

Property rights reside with the University of California. Literary rights are retained by the creators of the records and their heirs. For permissions to reproduce or to publish, please contact the Southeast Asian Archive Librarian.

Preferred Citation

Southeast Asian Genetics Program records. MS-SEA017. Southeast Asian Archive, The UC Irvine Libraries, Irvine, California. Date accessed.
For the benefit of current and future researchers, please cite any additional information about sources consulted in this collection, including permanent URLs, item or folder descriptions, and box/folder locations.

Acquisition Information

Gift of Dr. Kenneth W. Dumars, director of the SEAGEP, 1998.

Processing Information

Processed by Anna Liza Posas in 2002. Processing was supported by a Library Services and Technology Act (LSTA) grant from the California State Library.

Organizational History

In 1984 the Southeast Asian Genetics Program (SEAGEP) was established to identify services for Southeast Asian communities concerning birth defects and developmental disabilities, and conduct community and cross-cultural education. It was a four-year program funded by the Federal Bureau of Maternal and Child Health (MCH), a division of the Department of Health and Human Services. SEAGEP existed longer than its original grant cycle due to the continued support of MCH and other organizations. SEAGEP was directed by Kenneth W. Dumars and coordinated and administered by faculty and staff from the Division of Development Disabilities and Clinical Genetics, a University Affiliated Program at University of California, Irvine.
At the time of SEAGEP's establishment, the growing Southeast Asian communities consisted predominately of refugees from Vietnam, Cambodia, Laos, and members of the Cham ethnic group. Many of these groups resettled in Orange and south Los Angeles counties.
A persistent language and cultural barrier between Western-educated medical practitioners and their Southeast Asian patients became apparent. Western practitioners also had little information regarding the cultures and medical histories of Southeast Asian populations. Therefore, SEAGEP worked with Southeast Asian communities as well as the practitioners who would be serving these communities through seminars, bilingual literature, cooperative efforts with other public health organizations, and the production of a video, Southeast Asia: The Land, The People, and The Culture. SEAGEP also collected much-needed data and conducted intensive research regarding thalassemia, a genetic blood disorder common to the Mediterranean and Asian regions, and other prevalent genetic blood disorders.
As reflected in a pamphlet printed in 1987, SEAGEP more specifically sought to achieve the following goals:
  • Identify specific needs and concerns of members of the SEA communities regarding birth defects, development disabilities, and inherited disorders.
  • Increase education and awareness in the SEA communities regarding the availability and appropriate use of medical services.
  • Investigate the incidence and prevalence of specific inherited disorders within SEA communities.
  • Provide SEA medical services to SEA families affected with a congenital or inherited condition.
  • Increase the use of available community resources by SEA families.
  • Educate those who provide medical and counseling services to SEA cultures.
By 1991, SEAGEP had dissolved due to lack of grant funding.

Scope and Content of Collection

This collection comprises records produced by the Southeast Asian Genetics Program (SEAGEP), including correspondence and manuscripts, grant applications, research data regarding birth defects and genetic blood disorders, literature on Southeast Asian and Cham communities, SEAGEP publications, and video productions by SEAGEP and other health organizations. SEAGEP publications and video productions include multilingual versions. Literature concerning the Cham (a Muslim ethnic group from Vietnam and Cambodia) relates to an article published by Dr. Kenneth Dumars and Chantan S. Chea, "The Cham: A Population Isolate."

Arrangement

The collection materials are aranged alphabetically by document type, then filed topically. Except as noted, contents of folders are arranged chronologically. Audiovisual materials are arranged by format (VHS and U-matic) ,and then alphabetically by title.

Indexing Terms

The following terms have been used to index the description of this collection in the library's online public access catalog.

Subjects

University of California, Irvine. Southeast Asian Genetics Program--Archives.
Thalassemia--Archival resources.
Refugees--Vietnam--Archival resources.
Refugees--Cambodia--Archival resources.
Refugees--California--Orange County--Archival resources.
Refugees--California--Los Angeles--Archival resources.
Vietnamese Americans--California--Archival resources.
Traditional medicine--Archival resources.
Abnormalities, Human--Archival resources.
Refugee camps--Asia, Southeastern--Archival resources.
Cham (Southeast Asian people)--Archival resources.
Asia, Southeastern--Emigration and immigration--Archival resources.
California, Southern--Emigration and immigration--Archival resources.

Genres and Forms of Material

Video recordings--20th century.

Occupations

Medical research personnel.
Health care personnel.

Index Terms Related to this Collection

University of California, Irvine. Southeast Asian Genetics Program.
Online Archive of California.

Related Material

This collection is supplemented by materials in the SEA Archive's newspaper clippings vertical file.

Collection Contents

Box 1 : 1-4

Correspondence, manuscripts, and notes

Box 1 : 1

Notes on Thalassemia and Council of Regional Networks for Genetic Service (CORN), 1994-1995.

Scope and Content Note

Also includes 1990 Thalassemia conference proceedings manuscript and materials; original order of contents left intact.
Box 1 : 2

Proceedings from the 1990 Thalassemia in Asian Americans : working together conference, 1990-1992.

Scope and Content Note

Materials include 1990 report on refugee demographics in California.
Box 1 : 3

Submission to Journal of the American Medical Association and the Western Journal of Medicine by SEAGEP, 1991

Box 1 : 4

Thalassemia video production materials, 1987-1990

Box 1 : 5-11

Data, research notes, and surveys

Box 1 : 5

"Barts hemoglobin" newborn study test data, 1986-1987

Box 1 : 6-7

Birth defects data gathered by Dr. Le Dao, M.D, 1980-1988.

Physical Description: 2 folders.
Box 1 : 8

California immigration and birth data, 1982-1990

Box 1 : 9

Survey and pathology reports from Thalassemia community, 1986-1987

Box 1 : 10

Survey results from UCI Medical Center's Southeast Asian patients, 1986-1987.

Scope and Content Note

Includes speech written for the Southeast Asian medical symposium.
Box 1 : 11

Thalassemia and hydrops fatalis research, Orange County and Long Beach areas, 1990

Box 1 : 12-17

Grant applications

Box 1 : 12

March of Dimes and supporting material, 1987

Box 1 : 13-17

Maternal and Child Health (MCH) and supporting material, 1984-1989.

Physical Description: 5 folders.
Box 1 : 18 - 2 : 3

Literature, including clippings and other publications

Box 1 : 18

Cham people and culture, 1967-1989, predominant 1982-1989.

Scope and Content Note

Includes undated publications.
Box 2 : 1

SEAGEP abstracts, publications, and supporting materials, 1985-1987

Box 2 : 2-3

Southeast Asian community, 1971-1996, predominant 1981-1996.

Physical Description: 2 folders.

Scope and Content Note

Includes undated publications.
 

Videocassettes, U-matic

Box 3 : MS-SEA018-V07

House of the spirit: perspectives on Cambodian health care , produced by American Friends Service Committee (AFSC), 1985

Box 3 : MS-SEA017-V08

Peace has not been made: a Hmong family's encounter with a U.S. hospital , produced by John Finck & Doua Yang, Rhode Island Office of Refugee Resettlement, approximately

Box 3 : MS-SEA017-V09

Second lives: the shaping of a multi-ethnic community produced by Videovision Corp., Orange County, CA

Box 3 : MS-SEA017-V10 / V13

Thalassemia, produced by SEAGEP 1987.

Physical Description: 4 videocassettes.

Scope and Content Note

Cambodian, Hmong, Laos, and Vietnamese versions.
 

Videocassettes, VHS

Box AV-5 : MS-SEA017-V01

Hepatitis B- the invisible threat, produced by Cityscope 21, Long Beach, California, circa 1984-circa1991

Box AV-5 : MS-SEA017-V02

The people of the shining path, circa 1984-circa1991

Box AV-7 : MS-SEA017-V03

Southeast Asia: the land, the people, and the cultures , produced by SEAGEP, 1987

Box AV-7 : MS-SEA017-V03U

Researcher use copy, circa 1987

Box AV-7 : MS-SEA017-V04/ V06

Thalassemia.

Physical Description: 3 videocassettes.

Scope and Content Note

Includes 2 early versions and edited master of the final version dated 1998.