Guide to the Southeast Asian Genetics Program Records
Processed by Anna Liza Posas
Special Collections and Archives
The UCI Libraries
P.O. Box 19557
University of California
Irvine, California 92623-9557
Phone: (949) 824-3947
Fax: (949) 824-2472
Email: spcoll@uci.edu
URL: http://special.lib.uci.edu
© 2003
The Regents of the University of California. All rights reserved.
Guide to the Southeast Asian Genetics Program Records
Collection number: MS-SEA017
Special Collections and Archives
The UCI Libraries
University of
California
Irvine, California
Contact Information
- Special Collections and Archives
- The UCI Libraries
- P.O. Box 19557
- University of California
- Irvine, California 92623-9557
- Phone: (949) 824-3947
- Fax: (949) 824-2472
- Email: spcoll@uci.edu
- URL: http://special.lib.uci.edu
- Processed by:
- Anna Liza Posas
- Date Completed:
- 2002
- Encoded by:
- Andre Ambrus
© 2003 The Regents of the University of California. All rights reserved.
Descriptive Summary
Title: Southeast Asian Genetics Program records,
Date (inclusive): 1984-1991
Collection number: MS-SEA017
Creator:
California College of Medicine.
Extent:
2.6 linear feet
3 boxes
1 digitized image
Repository:
University of California, Irvine. Library.Special
Collections and Archives.
Irvine, California 92623-9557
Abstract: This collection comprises records produced by the Southeast Asian
Genetics Program (SEAGEP), including correspondence and manuscripts, grant applications,
research data regarding birth defects and genetic blood disorders, literature on Southeast
Asian and Cham communities, SEAGEP publications, and video productions by SEAGEP and other
health organizations. SEAGEP publications and video productions include multilingual
versions. Literature concerning the Cham (a Muslim ethnic group from Vietnam and Cambodia)
relates to an article published by Dr. Kenneth Dumars and Chantan S. Chea, "The Cham: A
Population Isolate."
Physical location: University of California, Irvine. Library. Special
Collections and Archives. Irvine, California 92623-9557.
Language:
English.
Selected digitized images from this collection.
Administrative Information
Access
Collection open for research.
Publication Rights
Property rights reside with the University of California. Literary rights are retained by
the creators of the records and their heirs. For permissions to reproduce or to publish,
please contact the Southeast Asian Archive Librarian.
Preferred Citation
Southeast Asian Genetics Program records. MS-SEA017. Southeast Asian Archive, The UC
Irvine Libraries, Irvine, California.
Acquisition Information
Gift of Dr. Kenneth W. Dumars, director of the SEAGEP, 1998.
Processing Information
Processed by Anna Liza Posas in 2002. Processing was supported by a Library Services and
Technology Act (LSTA) grant from the California State Library.
Organizational History
In 1984 the Southeast Asian Genetics Program (SEAGEP) was established to identify services
for Southeast Asian communities concerning birth defects and developmental disabilities, and
conduct community and cross-cultural education. It was a four-year program funded by the
Federal Bureau of Maternal and Child Health (MCH), a division of the Department of Health
and Human Services. SEAGEP existed longer than its original grant cycle due to the continued
support of MCH and other organizations. SEAGEP was directed by Kenneth W. Dumars and
coordinated and administered by faculty and staff from the Division of Development
Disabilities and Clinical Genetics, a University Affiliated Program at University of
California, Irvine.
At the time of SEAGEP's establishment, the growing Southeast Asian communities consisted
predominately of refugees from Vietnam, Cambodia, Laos, and members of the Cham ethnic
group. Many of these groups resettled in Orange and south Los Angeles counties.
A persistent language and cultural barrier between Western-educated medical practitioners
and their Southeast Asian patients became apparent. Western practitioners also had little
information regarding the cultures and medical histories of Southeast Asian populations.
Therefore, SEAGEP worked with Southeast Asian communities as well as the practitioners who
would be serving these communities through seminars, bilingual literature, cooperative
efforts with other public health organizations, and the production of a video,
Southeast Asia: The Land, The People, and The Culture. SEAGEP
also collected much-needed data and conducted intensive research regarding thalassemia, a
genetic blood disorder common to the Mediterranean and Asian regions, and other prevalent
genetic blood disorders.
As reflected in a pamphlet printed in 1987, SEAGEP more specifically sought to achieve the
following goals:
- Identify specific needs and concerns of members of the SEA communities regarding
birth defects, development disabilities, and inherited disorders.
- Increase education and awareness in the SEA communities regarding the availability
and appropriate use of medical services.
- Investigate the incidence and prevalence of specific inherited disorders within SEA
communities.
- Provide SEA medical services to SEA families affected with a congenital or inherited
condition.
- Increase the use of available community resources by SEA families.
- Educate those who provide medical and counseling services to SEA cultures.
By 1991, SEAGEP had dissolved due to lack of grant funding.
Scope and Content of Collection
This collection comprises records produced by the Southeast Asian Genetics Program
(SEAGEP), including correspondence and manuscripts, grant applications, research data
regarding birth defects and genetic blood disorders, literature on Southeast Asian and Cham
communities, SEAGEP publications, and video productions by SEAGEP and other health
organizations. SEAGEP publications and video productions include multilingual versions.
Literature concerning the Cham (a Muslim ethnic group from Vietnam and Cambodia) relates to
an article published by Dr. Kenneth Dumars and Chantan S. Chea, "The Cham: A Population
Isolate."
Arrangement
The collection materials are aranged alphabetically by document type, then filed topically.
Except as noted, contents of folders are arranged chronologically. Audiovisual materials are
arranged by format (VHS and U-matic) ,and then alphabetically by title.
Indexing Terms
The following terms have been used to index the description of this collection in the
library's online public access catalog.
Subjects
University of California,
Irvine. Southeast Asian Genetics Program--Archives.
Thalassemia--Archival resources.
Refugees--Vietnam--Archival resources.
Refugees--Cambodia--Archival resources.
Refugees--California--Orange County--Archival
resources.
Refugees--California--Los Angeles--Archival
resources.
Vietnamese Americans--California--Archival
resources.
Traditional medicine--Archival resources.
Abnormalities, Human--Archival resources.
Refugee camps--Asia, Southeastern--Archival
resources.
Cham (Southeast Asian people)--Archival
resources.
Asia, Southeastern--Emigration and
immigration--Archival resources.
California, Southern--Emigration and
immigration--Archival resources.
Genres and Forms of Material
Video recordings--20th century.
Occupations
Medical research personnel.
Health care personnel.
Index Terms Related to this Collection
University of California, Irvine. Southeast
Asian Genetics Program.
Online Archive of California.
Related Material
This collection is supplemented by materials in the SEA Archive's newspaper clippings
vertical file.
Collection Contents
Box 1 : 1-4
Correspondence, manuscripts, and notes
Box 1 : 1
Notes on Thalassemia and Council of Regional Networks for Genetic Service
(CORN), 1994-1995.
Scope and Content Note
Also includes 1990 Thalassemia conference proceedings manuscript and materials;
original order of contents left intact.
Box 1 : 2
Proceedings from the 1990
Thalassemia in Asian
Americans : working together
conference, 1990-1992.
Scope and Content Note
Materials include 1990 report on refugee demographics in California.
Box 1 : 3
Submission to
Journal of the American Medical
Association and the Western Journal of Medicine
by SEAGEP, 1991
Box 1 : 4
Thalassemia video production materials, 1987-1990
Box 1 : 5-11
Data, research notes, and surveys
Box 1 : 5
"Barts hemoglobin" newborn study test data, 1986-1987
Box 1 : 6-7
Birth defects data gathered by Dr. Le Dao, M.D, 1980-1988.
Physical Description:
2 folders.
Box 1 : 8
California immigration and birth data, 1982-1990
Box 1 : 9
Survey and pathology reports from Thalassemia community, 1986-1987
Box 1 : 10
Survey results from UCI Medical Center's Southeast Asian patients, 1986-1987.
Scope and Content Note
Includes speech written for the Southeast Asian medical symposium.
Box 1 : 11
Thalassemia and hydrops fatalis research, Orange County and Long Beach areas,
1990
Box 1 : 12
March of Dimes and supporting material, 1987
Box 1 : 13-17
Maternal and Child Health (MCH) and supporting material, 1984-1989.
Physical Description:
5 folders.
Box 1 : 18 - 2 : 3
Literature, including clippings and other publications
Box 1 : 18
Cham people and culture, 1967-1989, predominant 1982-1989.
Scope and Content Note
Includes undated publications.
Box 2 : 1
SEAGEP abstracts, publications, and supporting materials, 1985-1987
Box 2 : 2-3
Southeast Asian community, 1971-1996, predominant 1981-1996.
Physical Description:
2 folders.
Scope and Content Note
Includes undated publications.
Box 3 : MS-SEA018-V07
House of the spirit: perspectives on Cambodian health
care
, produced by American Friends Service Committee (AFSC), 1985
Box 3 : MS-SEA017-V08
Peace has not been made: a Hmong family's encounter with a
U.S. hospital
, produced by John Finck & Doua Yang, Rhode Island
Office of Refugee Resettlement, approximately
Box 3 : MS-SEA017-V09
Second lives: the shaping of a multi-ethnic community
produced by Videovision Corp., Orange County, CA
Box 3 : MS-SEA017-V10 / V13
Thalassemia, produced by SEAGEP 1987.
Physical Description:
4 videocassettes.
Scope and Content Note
Cambodian, Hmong, Laos, and Vietnamese versions.
Box AV-5 : MS-SEA017-V01
Hepatitis B- the invisible threat, produced by
Cityscope 21, Long Beach, California, circa 1984-circa1991
Box AV-5 : MS-SEA017-V02
The people of the shining path, circa 1984-circa1991
Box AV-7 : MS-SEA017-V03
Southeast Asia: the land, the people, and the
cultures
, produced by SEAGEP, 1987
Box AV-7 : MS-SEA017-V03U
Researcher use copy, circa 1987
Box AV-7 : MS-SEA017-V04/ V06
Thalassemia.
Physical Description:
3 videocassettes.
Scope and Content Note
Includes 2 early versions and edited master of the final version dated 1998.
